But Claire took on the evaluation process to get on the list with laser focus. Youll be missed deeply. Read about our approach to external linking. [12][1][13], In 2016, Wineland was listed as one of Seventeen magazine's 17 Power Teens. She was 21. [10], Wineland continued to operate her YouTube channel and uploaded nine videos prior to her death. To face each day, Claire Wineland undergoes hours of breathing treatments. Im just really overwhelmingly grateful for all of this. appreciated. Claires remarkable family were so happy for the other families that were now getting the calls that the organ they had long been waiting for was now available for transplant. . According to her, pitying ill people was disempowering them. Through videos, she shared her feelings, and her thoughts on cystic fibrosis, and life expectancy. UC San Diego Health, San Diego, California, United States. A post shared by Claire Wineland (@claire.wineland) on Aug 25, 2018 at 10:37pm PDT. "I had to be honest," she once explained. Read full obituary. I dont want to actually die. She had a popular YouTube channel, gave . She also addressed her views on society's notion of attractiveness in disabled people and sought to break these taboos. Nipsey Russell Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! Jessy Dixon Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! In late May, she made the list and shared the exciting news with her social media followers who dot the globe. In early 2018, Winelands health deteriorated, which necessitated her to undergo a double-lung transplant. Recipient of Los Angeles Business Journals Small Nonprofit of the Year, the foundation provides grants to families affected by CF, offering both emotional and financial support. Your effort and contribution in providing this feedback is much In one of the last videos Claire posted, she went where she hadn't before.A self-described "goofball," she usually engaged people with humor and optimism. But then, a mix of health and life complications took a toll and knocked her off the list, temporarily. She sat in an educational meeting at UC San Diego Health's transplant center and diligently took notes.Revealed on her left ankle was a tattoo: the thumbs-up "Don't Panic" logo from "The Hitchhiker's Guide to the Galaxy. You are an inspiration and brought joy to many. At a 2017 TEDx talk, Ms Wineland spoke about the importance of self-worth when living with a life-shortening illness. ! she posted on Twitter, not long before she was wheeled into the operating room in San Diego. Living a life we can be proud of is something we can control. On September 2, 2018, she passed away peacefully, at the 'US San Diego Thornton Pavilion.' Her organs were donated to needy patients. She decorated her hospital room, and posted inspirational messages on its walls. Im grateful for my own head and for all the weird things in it. 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The medical team that tended to her became family. When it came to her care, she knew her body best what worked for her, what didnt and how far she was willing to go. Claire Lucia Wineland (April 10, 1997 September 2, 2018) was an American activist, author, speaker and social media personality. The Plain Dealer Homepage. YouTube Originals released "Claire," a documentary about Wineland, which was directed and produced by Academy Award winner Nicholas Reed (The Lady in Number 6) and Ryan Azevedo ("Unpinned") and produced by Paul Foley (Unpinned). 2:33 PM EDT, Tue September 4, 2018. She was placed in a medically-induced coma, for 16 days. She was not in any pain and the medical staff said it was the most peaceful passing they had ever witnessed. In April 2010, after a routine surgery, Wineland had an infection which led to lung failure. Updated [2][3] Through her non-profit organization, Claire's Place Foundation, she provided support to children and families affected by cystic fibrosis (CF). "See y'all on [the] other side. [5] She enjoyed performing from a young age and appeared in The Music Man at age four. Im not an innocent and Im not a child. Its not for me and never has been.. Claire had a change of heart about transplant earlier this year, prompted by a steep decline in her health that robbed her of the energy and ability to do what gave her joy and purpose. The 'My Last Days' Subject Is Helping Others Live Their Best Lives", "A lung transplant gave her hope for a longer life; now her family prays for 'another miracle', "What I - and the World - Learned from Claire Winland's Passing", "AARC Congress Announces Claire Wineland As Keynote Speaker", "breathless choir Claire's Place Foundation", "I stopped doing the Clairity Project because I got screwed over", "Claire Wineland, inspirational speaker and social media star, dies one week after lung transplant", "Meet the 2015 Teen Choice Pro-Social Honorees", "Nonprofit & Corporate Citizenship Awards 2014", Claire's Place Foundation: Official Website, https://en.wikipedia.org/w/index.php?title=Claire_Wineland&oldid=1133052069, 21st-century American non-fiction writers, Short description is different from Wikidata, Creative Commons Attribution-ShareAlike License 3.0, This page was last edited on 12 January 2023, at 02:13. I have step parents that are fabulous. Claire Wineland, 21, became renowned for her posts about illness and mortality on social media. She was a voracious reader and wrote books like- Every Breath I Take, and Surviving and Thriving with Cystic Fibrosis. She'd work on a book -- promising it wouldn't be "another happy sick person book" -- and appreciate the small things like swims in the ocean for as long as she was able.Ata TEDx talkshe gave last year, Claire made a point of saying how cystic fibrosis helped give her a quality of life. "Go enjoy it, 'cause there are people fighting like hell for it.". Claire Wineland was born on April 10, 1997, in Austin, Texas. Wineland uploaded videos in her personal vlog. I'm grateful for the chance to keep being a person," she said. She listened to the risks and the long list of side effects and emerged unfazed. "Claire was able to save the life of two people, her right kidney was transplanted to a 44 year old woman in San Diego, and her left kidney was transplanted to a 55 year old male in Northern California. "They saw her into this world for her first breath and were with her for her last," Laura McHolm, the board chair for Claire's foundation, wrote in a Facebook post.https://www.facebook.com/clairesplace1/photos/a.201156033256783/1960745163964519/?type=3&theaterLess than 3% of lung transplant recipients have a stroke between the surgery and hospital discharge, according to theUnited Network for Organ Sharing, which operates the nation's organ transplant system.Claire, who understood the importance of organ donation, was a donor herself. "Death is Inevitable. Claire, who understood the importance of organ donation, was a donor herself. By asking for it, she said, she could relax and get in the headspace for whatever would come next.Before signing off, Claire implored viewers to do one thing. Wineland enjoyed performing on stage from a young age. George Steinbrenner Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! Due to no formal contracts over ownership of the project being in place, the company continued to profit from the project. "Claire had a change of heart about transplant earlier this year, prompted by a steep decline in her health that robbed her of the energy and ability to do what gave her joy and purpose. She was also a speaker for the motivational TEDx Talks.. She was born in Austin, Texas with Cystic Fibrosis and spent roughly 1/3 of her life in the hospital. [2] Inspired by the community's support while she was in a coma, she launched the 501(c)(3) non-profit to provide support to children with cystic fibrosis and their affected families. She has gone on to become an advocate for others suffering from the disease she has had since birth. She expected to die young. Paul Gray Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! She had plenty of emotional support, but she worried what transplant surgery might mean for her future and her parents future if it didnt go well. Save my name, email, and website in this browser for the next time I comment. Claire Wineland became renowned for her posts about illness and mortality on social media, Warning: Third party content may contain adverts. The way sick people are captured in media completely ruined any ounce of self confidence i had growing up. What if they poured everything into her transplant, and she didn't make it or was not able to work again, she explained later. Its so much easier to believe that sick people are cherubs- held in perpetual youth and innocence- who simply dont understand the truth of their condition because they are living up in the clouds. Ms Wineland was a supporter of ex-presidential candidate Bernie Sanders, and she once fled hospital to attend one of the Vermont senator's rallies. A self-described goofball, she usually engaged people with humor and optimism. Ms Wineland underwent a successful double lung transplant on 26 August, but suffered a stroke shortly afterwards. When she was unable to create videos due to declining health, the company cut her off. She was not in any pain and the medical Less than 3% of lung transplant recipients have a stroke between the surgery and hospital discharge, according to the United Network for Organ Sharing, which operates the nations organ transplant system. "It's about what you're making of your life and whether you can find a deep pride in who you are and what you've given. Claire Wineland was known for her positivity, warmth, and humor. She appeared in the doc-series My Last Days, which was created by actor Justin Baldoni. See yall on [the] other side.. Also, Claires corneas and tissue was recovered and she will be able to enhance the life of up to 50 people, a family services specialist wrote to Yeager in an email message. 2023 BBC. She wanted to help other affected families too. She revealed that after taking a break from creating videos for some months due to declining health, the company refused to allow her to log into any accounts relating to The Clairity Project. The Extended Hospital Stay Grant program provides financial assistance to families with children experiencing a hospital stay of at least 14 consecutive days due to cystic fibrosis. On Sunday evening, after being taken off life support and using the newly transplanted lungs she received just one week earlier, Claire took her last breath. They saw her into this world for her first breath and were with her for her last, Laura McHolm, the board chair for Claires foundation, wrote in a Facebook post. When it came to her care, she knew her body best -- what worked for her, what didn't and how far she was willing to go.So when she became a legal adult and told them she had no intention of getting a double-lung transplant, they had to accept her decision, even if it pained them. But last month, as . We would like to show you a description here but the site won't allow us. I didnt realize how much I didnt expect to live this long. Find an Obituary . Discovery Company. "She had plenty of emotional support, but she worried what transplant surgery might mean for her future and her parents' future if it didn't go well. She did.No matter the obstacles placed in front of her, of which there were many, she refused to be pitied and was determined to live a life that mattered. Hap Moran Cause of Death, Age of Death, and Other Facts! I was convinced I looked like an ugly sickly five year old for the first two years of high school and that that was why guys never seemed to be interested in me in that way. The years of telling myself I can do it on my own are over. "It hurts everything inside of me to make this video," she said into the camera. Before signing off, Claire implored viewers to do one thing. But not long after the successful surgery, hope turned to fear. More than 30,000 people in the United States, more than 70,000 worldwide, have cystic fibrosis, according to theCystic Fibrosis Foundation. FamousBirthdays.com - use subject to the information collection practices disclosed in our privacy policy. On August 26, 2018, a week after the transplant surgery, Claire Wineland suffered a stroke due to a blood clot which cut off the blood supply to the right side of her brain. [2] [3] Through her non-profit organization, Claire's Place Foundation, she provided support to children and families affected by cystic fibrosis (CF). Despite suffering from a critical illness, she maintained a positive attitude to life. On August 26, 2018, Wineland suffered a stroke due to a blood-clot that stopped blood flow to the right side of her brain. On September 2, 2018, at 6:00 pm, she took her last breath at the UC San Diego Thornton Pavillion, a week after undergoing a lung transplant. As always thank you to @larissaperoux For taking he most bomb ass pictures of me that will ever be taken. They had been on the receiving end of that call just one short week ago. Laura McHolm, Chairman of the Board of Claires Place Foundation. I want to see what happens in life. She'd also get a butt.She knew that the call could come at any minute, and on August 26, it did. "The family intends to honor her memory by continuing to advanceClaire's Place Foundation, which she established to financially support others affected by her lifelong disease. The moment you realize it's not about avoiding suffering; it's about making something from your suffering, you're incredibly freed. Entrepreneur and founder of the award-winning non-profit organization Claires Place Foundation, which provides support to families living with Cystic Fibrosis. She has a younger sister, Elanore Nordquist. Sign up for our email list to stay in the know. Soulja Slim Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! Some people worried that shed waited too long and wouldnt be given the chance at continued life. A double-lung transplant, when successful, can add years to a patient's life.Claire's parents learned to trust their independent and strong-willed daughter. Claire Wineland, social media personality who spoke about living with cystic fibrosis, died Sunday, Sept. 2, 2018, of complications after suffering a stroke following a double-lung transplant,. Claire Wineland (1997-2018), inspiring speaker lived with cystic fibrosis. You can have a painful life. I am also, like thousands of other people living on this planet, sick. Last night at 6 pm- my dear friend and little soul sister -Claire took her last. When I was younger and obsessed with becoming an artist, the hospital was my New York loft apartment. Louis Zamperini Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! Though there was only 1% chance of her survival, she miraculously came out of it after 16 days. Claire Wineland gained prominence through her positive but realistic account of living with cystic fibrosis. At the time of birth, she had the life expectancy of only 5 years old. Check out the death cause, death date, and more facts about the. She was 21. Im grateful for all the people who donated to help me get through transplant. It also complicates digestion, affects the pancreas and other organs and, eventually, leads to respiratory failure. Get breaking news alerts& today's headlines inyour inbox. Claire was born with a severe disease-Cystic fibrosis (CF), a condition that affects breathing and digestion. At the age of 4, she made an appearance in The Music Man. Due to her illness she spent most of her childhood in hospitals. Go enjoy your life. "The nine-hour surgery went well, and her mother reported that the lungs were working great. "I'm grateful for the doctors that'll be scooping out these lungs and giving me some more life to work with. She had a popular YouTube channel, gave Her mother, Melissa Nordquist Yeager, and father, John Wineland, separated, when she was three years old. The BBC is not responsible for the content of external sites. I didn't expect to have a chance. Sick people deserve to be seen as more than hollow shells just waiting for their lives to begin. The family received immense support from friends, and community. She has a younger sister named Ellie. On September 2, 2018, she passed away peacefully, at the US San Diego Thornton Pavilion. Her organs were donated to needy patients. Claire Wineland (1997 - 2018) was a social media personality known for her inspiring and humorous approach to living with the terminal illness cystic fibrosis. She was not in any pain and the medical staff said it was the most peaceful passing they had ever witnessed.". CNN Sans & 2016 Cable News Network. "None of it spooked me," Claire said afterward. Life isnt just about being happy. @larissaperoux We some cheese balls just cheesing it up. ", Claire Wineland, reflecting on her outlook on life. The BBC is not responsible for the content of external sites. In a post on its Facebook page, the Claire's Place Foundation said: "Our inspirational founder passed away. The way sick people are captured in media completely ruined any ounce of self confidence i had growing up. "Life isn't just about being happy. Its about what youre making of your life and whether you can find a deep pride in who you are and what youve given.. Menu. For more information and make a donation, please visit www.clairesplacefoundation.org.Footage courtesy of TV4 Entertainment Inc Here are some tips on how to prepare for death!Visit the Official CLAIRE MOVIE WEBSITE: https://clairemovie.comClaire Wineland Social MediaFacebook: https://www.facebook.com/clairewinelandInstagram: https://www.instagram.com/claire.wine SUBSCRIBE to Claire's Place Foundation Follow Claire's Place on FACEBOOK: https://www.facebook.com/clairesplace1/Check us out on INSTAGRAM: https://www.instagram.com/clairesplacefoundation/TWEET us at: https://twitter.com/clairewineland Visit CLAIRE'S PLACE FOUNDATION: https://clairesplacefoundation.org/ About Claires Place Foundation, Inc.Claires Place Foundation, Inc. is a 501(c)(3) non-profit organization providing support to children and families affected by cystic fibrosis (CF). Also, Claire's corneas and tissue was recovered and she will be able to enhance the life of up to 50 people," a family services specialist wrote to Yeager in an email message. Magnolia Shorty Death Facts: Age, Cause of Death, Birthday, Date of Death Tragedy! On Sunday evening, after being taken off life support and using the newly transplanted lungs she received just one week earlier, Claire took her last breath. "Yeager, who lost and quit jobs as hospital stays dictated, always marveled at her daughter's aura and her ability to lift up those around her.In 2017, Yeager recalled a conversation with Claire about death. She is my new hero, and forever. She had a younger sister named, Ellie. : `` our inspirational founder passed away was only 1 % chance of her childhood in hospitals nine prior... Continued life page, the company continued to operate her YouTube channel and uploaded videos. 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